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Drive Down Syndrome Research With Your Unique Story

You hold the key to longer and healthier lives for all people with Down syndrome

DS-Connect^®: The Down Syndrome Registry enables people with Down syndrome and their families to contribute to research studies, connect with Down syndrome researchers, and find resources and community events.

Join now

Physician listening to the heart of a patience with Down syndrome

Make Discoveries Possible

Easily share important information with researchers

Join now

Mother and her teenage son with Down syndrome smiling and looking at a laptop

Know the Facts

Access expert-curated resources to guide healthcare decisions

Explore resources

Man with Down syndrome and his mother sitting together and smiling

Join the Community

Be a member of an active community with a common cause

How it Works

Surveys

Surveys

Fill out confidential health-related surveys written by researchers who are studying Down syndrome.

Research

Research

Researchers use data from thousands of participants to make discoveries.

Participate

Participate

When researchers design new studies or clinical trials, you can opt-in to be notified and participate.

Resources

Resources

Find expert news, links and events, and see how the data from studies you've completed drives discoveries.

Joining DS-Connect takes just a few minutes.

Unlock the power of Down syndrome today!

Join DS-Connect

Did you sign up for DS-Connect
before January 1, 2025?

The DS-Connect website has been updated, with exciting new features coming soon.

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If you have a loved one with Down syndrome: Please reset your password to access your account, and we will notify you as the new features are launched.

Research

If you are a RESEARCHER: You no longer need an account and your previous account information has been removed. Find out about the tools for researchers available to you.